Stevens-Johnson Syndrome Canada

►Stevens-Johnson Syndrome Canada (SJS Canada) is a non-profit organization dedicated to spreading awareness about the extremely rare life-threatening medical illness, Stevens Johnson Syndrome and Toxic Epidermal Necrolysis SJS/TEN).

Our VISION:  To facilitate an umbrella of services for the Stevens Johnson Syndrome and Toxic Epidermal Necrolysis (SJS/TEN) patient community in Canada.

Our AIM:  

►Promote health by providing people suffering from Stevens Johnson Syndrome and Toxic Epidermal Necrolysis (SJS/TEN) as well as their families and caregivers with access to related counselling, support groups and information programs.

►To advance education by providing workshops, forums and seminars about the Stevens Johnson Syndrome and Toxic Epidermal Necrolysis to the public and medical professionals.

Open Positions at Stevens-Johnson Syndrome Canada

Volunteer Website/ Technical Coordinator

SJS Canada is looking for a volunteer Website Coordinator to manage the official SJS Canada website, update it with information as needed, and maintain an overall professional appearance of the site. The website was created and is operated using Wix, reducing the need for coding experience.

Volunteer Community Outreach Coordinator

Stevens-Johnson Syndrome Canada is looking for an enthusiastic and committed individual to serve as a volunteer Community Outreach Coordinator. This volunteer role is crucial in strengthening our organization's ties with donors, the media, and the community. The Outreach Coordinator plays a pivotal role in public relations, research, and administration, all contributing to advancing our mission of spreading awareness about Stevens-Johnson Syndrome.

Volunteer Grant & Proposals Writer

Stevens-Johnson Syndrome Canada (SJSC) is seeking a volunteer Grant and Proposal Writer to provide administrative support to the President. The position is remote and requires the candidate to be able to volunteer 3 – 5 hours per week, to ensure effective management and operation of the organization. This is an excellent opportunity to gain experience in a non-profit administration.

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